|
There is a wealth of internet-based
information out there - make the most of it! This page contains some
links that will get you started.
New Zealand Support Groups' Websites
ME/CFS-related Organisations
ME-WEB
ME-WEB
is linked to all CFIDS/ME databases in the World |
www.me-net.dds.nl/meweb/index.html |
| Chronic Fatigue and Immune Deficiency Society (of
America) |
www.cfids.org |
American Association for Chronic Fatigue Syndrome
Research
scientists, physicians, licensed medical healthcare
professionals, and others interested in promoting the exchange
of ideas for CFS/FM research and patient care |
www.aacfs.org |
| Action for ME (UK) |
www.afme.org.uk |
| Action for ME for Children & Young People (UK) |
www.a4me.org.uk |
FM-CFS Canada
Holds
a national patient registry for Canada, and provides free new
educational materials for patients and physicians, and advocates
the community's needs to government |
http://fm-cfs.ca |
National ME/FM Action Network (Canada)
Dedicated
to advancing the recognition and understanding of ME/CFS) and
FMS through education, advocacy, support, and research |
www.mefmaction.net/ |
Co-Cure
CFS
& FM Information Exchange Forum |
www.co-cure.org |
Sleepy Teenzzz
An
online support group made by teenz with CFS, for teenz with CFS |
www.geocities.com/sleepyteenzzz/ |
A.C.T. ME/CFS Society Inc. (Canberra)
Information
from Australia for people with Myalgic Encephalopathy,
Fibromyalgia, ME/CFS and Chronic Pain |
www.mecfscanberra.org.au |
| ME/CFS Society (South Australia) |
www.sacfs.asn.au |
| ME/CFS/FM Assn of Queensland |
www.mecfsqld.org.au |
M.E./Chronic Fatigue Syndrome Society of Victoria
A
non-profit charitable organisation dedicated to serving the
Chronic Fatigue Syndrome Community in Victoria and Tasmania |
www.vicnet.net.au/~mecfs/ |
| ME/CFS Society of New South Wales |
www.me-cfs.org.au |
| ME/CFS/FM Support Assn (Toowoomba) |
www.users.bigpond.com/mefmtba/ |
| M.E. India |
www.meindia.org |
Medical Links
New
Zealand Doctor
A New Zealand national
fortnightly newspaper providing information to family doctors.
Also contains a search archive of articles and news since
January 1996 |
www.knowledge-basket.co.nz/
nzdoctor/welcome.html |
| Australian
E-Medical Services Directory |
www.cundle.com.au/medindex.html |
| New
England Journal of Medicine |
www.nejm.org |
R.E.D. Laboratories
A
biotechnology
company developing clinical diagnostic tests and therapeutics
for chronic immune diseases such as CFS, multiple sclerosis and
cancer |
www.redlabs.com |
Dr.
David Bell
A
GP specialising in CFS/ME. Publishes a regular newsletter
"The Lyndonville News" with perceptive, helpful and
encouraging comments about ME management and research progress |
www.davidsbell.com |
Dr.
Myhill
A
conventional doctor in London with a very helpful and honest
website, including his evaluation of treatments. Click on
'Fatigue' on the left side of the Home Page |
www.drmyhill.co.uk |
Research Links
ME
Research UK (formerly MERGE)
Aims
to identify and fund scientific (biomedical) investigation into
the causes, consequences and treatment of M.E. |
www.meresearch.org.uk/ |
Alison Hunter Memorial Foundation
Aims
to provide information and advocacy, and to promote
opportunities for national and international research
collaboration |
www.ahmf.org |
Pharmaceutical and Disability Support Links
NZ
Pharmac (NZ Pharmaceutical Management Agency Ltd)
Pharmac manages the "drug
bill" on behalf of the New Zealand Government.
This site contains Information on:
 |
What
the agency does
|
|
calculation
of prescription costs (these DO NOT include pharmacy mark
up) using a search facility.
|
Calculating
prescription costs on this site is a guide only as costs may
change at short notice. |
www.pharmac.govt.nz |
| For
other pharmaceutical information |
www.medsafe.govt.nz |
Health and Disability Commissioner
The
Health and Disability Commissioner is an independent agency set
up to promote and protect the rights of consumers who use health
and disability services, and to help resolve problems between
consumers and providers of health and disability services. |
www.hdc.org.nz |
Weka
NZ's disability information web
site, for people with disabilities, their families, whanau and
caregivers, health professionals and disability information
providers |
www.weka.net.nz |
Personal Links
Other Relevant Links
NZ Organisation for Rare Disorders
New Zealand's
central starting point for information about rare diseases |
www.nzord.org.nz |
|
But You Don't Look Sick?
This website is about living life to the fullest with
an invisible disease. Designed to put a personal "real-life" face on the disease instead of a stuffy medical journal
entry. Collection of stories, book reviews, product reviews, resources, a message board and answers to the endless questions of:
But you don't look sick? |
www.butyoudontlooksick.com |
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