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Welcome to the website of the Associated New Zealand ME Society
(ANZMES), serving New Zealanders with Myalgic Encephalopathy / Chronic Fatigue
Syndrome since 1980.
ANZMES is proactive and busy serving existing members and assisting those who are newly diagnosed, as well as helping those who may
only suspect they are sufferers.
ME (Myalgic Encephalopathy) is a debilitating disease that can affect
anyone. In New Zealand, it is
estimated that there are around 20,000 sufferers. It is thought to afflict
around 150,000 in the UK, and over one million in the US. The
economic cost to each family with a sufferer has been estimated to
be in the region of NZ$30-40,000 per year.
Medical definitions of the condition vary, but the following elements are
considered common:
 | ongoing flu-like fatigue |
 | slow recovery from exercise |
 | muscle aches |
 | impaired concentration ('brain-fog') |
 | sore throats |
 | swollen glands |
 | gastrointestinal problems (IBS) |
 | sleep disorders |
 | low (or high) body temperature |
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ANZMES undertakes a wide range of functions for members including:
 | support from both the national body and local
support groups |
 | national and local advocacy |
 | a high quality quarterly journal |
 | support for medical research into
treatment and management of ME/CFS |
 | a wide range of
publications |
 | information, tips and advice |
 | a community of like-minded and sympathetic people |
Click here
to read a story of an ME sufferer.
There is a network of support groups throughout New Zealand, and
ANZMES is the national body. We believe that both local support and
national coordination is necessary.
On this website, you will find a range of useful information for
sufferers, caregivers, friends and medical professionals. It is an
evolving site however, so please visit again. If you have a suggestion
to make please contact one of the people on the Contacts
page.
ANZMES is one of the oldest ME associations in the
world. In 2005, we celebrated our 25th anniversary!
We are looking forward to the next 25 years, so this is a great
time to join this active organisation. The logo in the top left corner of this page symbolises the
benefit that a national organisation and local support groups can
provide to sufferers. The albatross takes advantage of great updrafts of
warm air to soar very high, and this is the aim of our group.
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LATEST NEWS
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Report
from The International Conference on ME/CFS Biomedical
Research at Cambridge UK
5 May 2008
Dr
Ros Vallings attended this international conference on ME/CFS research
with the assistance of ANZMES. Her excellent report can be
read by clicking
HERE
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AWARD
ANZMES is proud to
acknowledge
Dr Ros Vallings
award in the
New Years
Honours.
To read more
click here
AWARD
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MEETING NOTICES
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Dr ROS VALLINGS
will be speaking
At a number of locations following her attendance at a
conference in Cambridge UK
For more details click
HERE
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Rotorua
Meeting 27 June 2008
For more details click
HERE
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AGM
2 August 2008
See June
Meeting Place
for details
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These
events are advertised for your information. ANZMES does not
necessarily support the views of their organisers
CFS/ME
in the
New York Times
A
recent article on CFS/ME appeared in the New York Times. It
highlighted the progress made by the scientific and patient
communities in coming to understand the condition and gaining its
acceptance into the medical and general communities. Click here
to go to the New York Times' website to read the article.
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The 8th International Association for Chronic Fatigue
Syndrome Conference 2007
A short account of this conference written by Dr David Bell can
be found here.
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ME DAY
CANARY AND ME
. Click
here for details
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12
May: ME Awareness Day!
If
you are involved in a ME Awareness Day event, please write to us so
we can help you publicise it.
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